"The Disease of a 1000 Faces” May Is Lupus Awareness Month
Hello all let's welcome May with some knowledge. Last year I was asked to write about Lupus. The request came from a friend in Jamaica. Lupus has become a disease that is affecting individuals in our own community more often than you know. May is Lupus awareness Month and like all illnesses, I will continue to share information and encourage awareness and support for those living with Lupus and other health issues.
No one knows for sure what is the cause of lupus, but What we do know is that, in lupus, the immune system (the body’s defense against viruses and bacteria) is unable to tell the difference between intruders and the body’s own tissues. Trying to do its job, it attacks parts of the body, causing inflammation and creating the symptoms of lupus.Until science fully understands how the immune system works, the specific cause of lupus remains unknown. As your advocate is is very important for you to understand the necessity surrounding explaining your symptoms properly to your Doctor. Persistence is the key when navigating the health care system. It can change your health care outcomes significantly. Symptoms are the only signs that Doctors have to work off of when trying to treat you or diagnose you. One of the common issues that I find is people trying to do it on their own. Often I will hear, " I looked up the information up on the internet" or "I'm going to see someone in alternative medicine like a naturopath" or even I will often here "oh my Friend told me" let's not forget the ever famous "I'll keep praying" but there is no greater disesase than lack of Knowledge. Lupus symptoms vary from person to person and can include fatigue, joint pain, swelling, rashes, and fever. And since no two cases present exactly alike, lupus is notoriously misdiagnosed as rheumatoid arthritis, a virus, or something else. The condition can harm the skin, kidneys, heart, nervous system, blood cells, for this reason it is dubbed "The Disease of a 1000 Faces.”
Despite being a disease doctors often miss lupus this is actually quite common. According to Health.com About 1.5 million people in the United States have it and it is estimated that it affects over 1:1000 Canadians. The use of an health care advocate can help you through any journey that involves tackling the health care system.
Patients with Lupus should eat a diet low in sugars and carbohydrates, low in fat, high in fibre and with moderate amounts of protein. Patients who reduce their intake of red or white meat (including chicken) in favour of fish and plant proteins do better. Abundant Omega-3 supplements are advisable, 3,000mg being the minimum. Smoking is an absolute no. Exercise is encouraged for various reasons. Apart from the beneficial effects on the cardio-vascular system, it also counteracts the insomnia many Lupus patients often suffer from.
Such power full Words by Jalesa in Pride News Magazine Find the full interview below
Pride News Magazine: What would you like to see happen?
Jalesa Martin: In regards to Lupus awareness, I would definitely love to see more people learning about Lupus, not just as a disease, but also about the immense effects that it has on the body. When I tell people that I have lupus, I get one of two answers: “What is that?” or “But you don’t look sick!” One thing I would love for people to be informed about is that, Lupus is an invisible illness that does not always have external effects on the body.
Although we don’t look sick, many things are going on inside our bodies and causing us pain internally. I would also love for new treatments to be developed which have less long-term side effects on people with Lupus.
|Marcia Boodie on Instagram Supporting The Lupus walk for Tashana last year|
Since lupus has many symptoms that requires the use of many specialists, As your Health care advocate I am available to help support your journey. Advocacy for your health care needs is the mission of JA Nursing We Care Inc. Your Knowledge about your illness, and the literacy needed to understand your symptoms is vital to receiving the best care.
JA Nursing tip of the week always document your visits, carry an expert patient book (coming soon by JA Nursing Services) but until then get a notebook and write everything down. All illnesses require you to be the most important member of your health Care Team
SAVE THE DATE: Put On Purple on May 20, 2016
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